The fact is that there are many wonderful parents out there who are ASD, many received an adult diagnosis of ASD due to the medical professionals blinkered view towards ASD and belief that you have to have significant "problems" such as being non verbal to gain an ASD diagnosis. This systemic abliesm is also partly behind the constant threats of FII against parents trying to get diagnosis for children who may not present as stereotypically autistic.
I undertook a self selecting survey in order to show the experiences of families with autistic parents and/or children when going through the Children's Services system. The results were predictably poor.
As we have seen repeatedly, many of those dealing with the sometimes horrific consequences of children's services intervention and monitoring came into the system by asking for help.
Have yo had child services involvement?
Yes asked for help 40.6%
Yes referred by school 18.8%
Yes referred by medical professional 12.5%
Yes referred by someone else 28.1%
A large proportion of the parents who believed themselves to be autistic, had avoided assessment due to fear of negative consequences
"If either parent suspects they are ASD why do they not have a diagnosis?"
Don't want a diagnosis 18.6%
Scared of negative reactions to my diagnosis 34.9%
Refused an assessment 9.3%
Awaiting assessment 9.3%
Haven't got round to it yet 27.9%
This fear of negative treatment seems well founded as in many cases parental ASD is treated negatively or raised as a concern
Families are more likely to self refer to children's services by asking for help if they have both parents and children with ASD