Affects of child services involvement on families with SEND

I undertook a survey on the affects of the involvement of social services on families who have children with SEND.
The survey ran for just over a month and I received 113 respondents.
Overall, 33% of those surveyed were threatened with child protection and 30% were threatened with removal of children. However only 38% of those threatened with removal of children suffered actual court proceedings seeking to remove children. Within those surveyed 19% suffered court proceedings seeking to remove children.

A significant point I would like to share from the results of the survey is that 30% of those surveyed originally asked for help. Out of those who approached child services for help and support;
25% were threatened with child protection proceedings
32% were threatened with removal of children
41% were directly accused of FII
66% were indirectly accused of FII (concerns raised for seeking 2nd opinion  seeking diagnosis or knowing medical terminology for example)
31% of those that approached child services for help and support had their children removed.
The long term consequences for those approaching child services for help are overwhelmingly negative.
34% of parents asking for help developed mental health problems due to child services involvement
43% of children in those families developed mental health problems
38% of those families developed financial difficulty due to child services involvement
31% experienced relationship breakdown
38% of children experienced a worsening of their condition
Only 6% of families asking for help found that their child's condition improved and only 3% experienced an improvement in family circumstances
Other consequences for the families who asked for help from child services were, isolation, stress, long term fear and mistrust of professionals for both adults and children and worrying, forced contact with abusive non resident parent.

For the 41% of families directly accused if fabricated and induced illness, a concerning 75% had adults with special educational needs, disability and/or chronic illness. 39% of those directly accused had a child with EDS (Ehlers Danlos Syndrome), 11% had a child with ME, 22% had mental health problems, 35% had SEN, 13 % had ADHD and a very worrying 43% had autism.
58% of those directly accused of fabricated illness felt proceedings were a direct result of complaining about services. There has been many recent news articles about how services like school and health are failing our SEND children. It would seem that the consequence of daring to complain about poor provision is to face accusations if child abuse and fabricated or induced illness.

Only parents who have been accused of fabricated and induced illness can really say how far reaching and completely devastating these accusations are. Within those families accused of fabricated and induced illness;
51% of parents developed mental health difficulties including PTSD
52% of children in those families  developed mental health difficulties
48% suffered financial difficulties
26% experienced relationship breakdown
52% saw a worsening in their child's condition
39% saw a worsening if adults condition
59% felt it was difficult to access medical care due to previous FII accusations
Other consequences included, collapse of business, loss of house, lost career, children scared of professionals, fear of attending appointments, distrust of professionals and children terrified they will be removed from their parents, being "bullied" into treatment that they felt was inappropriate or told to reduce use of services.
21% of those accused of fabricated and induced illness had their children removed.
The scale of this problem is huge, compared with the estimated scale of fabricated and induced illness, which I spoke about in a previous blog.

Even within those families not directly or even indirectly accused of fabricated and induced illness, the outcomes of involvement of child services are less than positive.
32% I f those not directly or indirectly accused of FII developed mental health problems
18% of children in these families developed mental health problems
18% of families suffered financially
23% suffered relationship breakdown
27% saw their childs condition worsen
27% saw an adults condition worsen
Only 9% saw an improvement for the child
Only 14% saw an improvement in family circumstances and only 5% saw an improvement in housing.
Other negative consequences for those families was isolation, fear of professionals and family stress.

The survey was shared on twitter and many non geographical Facebook groups. Most local authorities featured only once. However some seem over represented.
Northamptonshire accused one family directly of fii and 4 indirectly.
Hampshire accused 2 families directly and 3 indirectly.
Nottinghamshire accused 3 families of fii and indirectly accused one other family.
Warrington accused 2 families indirectly and 1 indirectly.
Rochdale accused 2 families directly and one indirectly.
Lancashire accused 2 families directly and 1 family indirectly.
Conwy, Durham, Leicestershire and Hertfordshire all accused 2 families directly of fii.
This is a very small survey, but I think there are some significant "hotspots" where families with children who have SEND are more likely to find themselves facing accusations of fii. Whether this is due to poor services which result in more complaints, or attitudes in the local authority and health trust I couldn't say.

If you are experiencing direct or indirect accusations of fii please join Fiightback Closed Group on Facebook or look at my list of resources for help.

Accusations of fabricated illness and child abuse used to bully innocent families

Fabricated or induced illness (formerly Munchausens By Proxy) is a rare form of child abuse. NHS choices website reckons that the incident of FII is 89 cases in every 100,000, however it does not quote its source. The government document "Safeguarding children in whom illness is fabricated or induced" put the figure at 0.5 out if every 100,000 over 5 and 2.8 in every 100,000 preschoolers, or 1 child in a million, per year.
FII takes many forms but usually includes;
- poisoning to induce symptoms
- physically inducing symptoms
-over or under medicating
- claiming false symptoms that are not easily verified
- exaggerating symptoms
- obtaining specialist treatment when not needed
- falsely alleging psychological illness in a child

However, despite the extreme and very rare nature of FII, accusations of FII are very commonplace. There is a worrying trend of using FII accusations routinely in child protection against any family that complains about services, is seen as "difficult", does not comply blindly or in any other way annoys professionals involved.

Current training for HCPs on FII gives a list of symptoms which is very worrying. These include, use of complaints procedures, seeking out advocates and support, advocating on behalf of the child and seeking multiple diagnosis. These behaviours are blatantly the normal behaviours of parents fighting for a seriously ill child or a child with additional needs who is being let down by the system.

What we end up with is a system that attacks families that are trying to care for children with rare, complex, invisible, or multiple illnesses, conditions and needs.

I compiled a survey to look at the extent of this problem as I am personally aware of a number of families who have been bullied in this way. What I found did not shock me, but I hope it can highlight this very real problem in our society.

I received 168 responses to my survey, of those 61% had been accused of FII. This worrying trend if FII is very ableist, targeting those families who have multiple members with extra needs, illness, or disability. 57% of parents accused of FII had an an additional need, chronic illness or disability themselves.

One surprise was that the accusations of FII seemed to be thrown at parents from a variety of socioeconomic backgrounds:
38 % were single parents in benefits
16% were a couple on benefits
38% were a couple with one or more person working
9% were single working parents
So it would seem that these accusations are not targeted at one class alone, however, families whose children have additional needs, chronic illness or disability are more likely to experience poverty (Kuper et Al 2012). Poverty  of course, not being measured by whether or not your parents work. It is estimated by Scope that disability costs an extra £570 on top of average living costs, so there is a massive financial burden to be taken into account when talking about families with children with additional needs.
However, according to the Office of National Statistics, single parent households make up 25% of families in the UK, so it would seem single parent households are overrepresentated in accusations if FII, making up 47% of those families accussed of FII.

Bullying by social services is of course, not limited to FII accusations. There does seem to be many similar trends through other malicious practice.
Of those surveyed who had experienced child protection proceedings, 59% had found themselves facing child protection proceedings following a complaint they had made. Worryingly, 18% faced child protection procedures after complaining about a professional abusing their child. If complaints of abuse by professionals like social workers and health care professionals are silenced with malicious proceedings, how can we trust those professionals with our children?

Within those parents who had experienced child protection proceedings, 54% have an extra need, chronic illness or disability themselves. Although it may be argued that parents with SEND or chronic illness may need additional support, this is not what is happening here. This is a high incident of these parents facing accusations of child abuse or neglect. A massive over representation of those with additional needs, illness or disability and shows the blatant ableism within health and social care.

This is reflected within the children of the families experiencing child protection proceedings, 87% of the families who faced child protection proceedings had a child with additional needs, illness or disability.
Remember again, that this isn't families being supported by social service, but those accused of abuse and neglect.

"Invisible" Illness and disabilities seem to be a particular target for these proceedings, namely;
- Autistic Spectrum Disorder
- Ehlers Danlos Syndrome
- Myalgic Encephalomyelitis
- Attention Deficit Hyperactivity Disorder
- Mental health difficulties
The ableist nature of society against those with Invisible illness and disability is well documented and there are current campaigns seeking to highlight Invisable illness and disability.
However this does not seem to have penetrated the health and social care community. Instead of offering support and understanding to those with these conditions, there seems to be a culture of disbelief.
This leads to mistrust and therefore a reduced likelihood of compliance and engagement with health and social care, which only increases their disbelief and suspicion.

Out if those that had been taken through child protection proceedings, 18% declared they home educated and the vast majority of them, 83%, had home education used as a concern against them. It has been highlighted in the media recently that education is often failing to meet childrens additional needs and forcing parents into home education, to then use this as a concern against the parents ignores the lack of provision for children with additional needs, disability and chronic illness.

One major point I feel need to be made is that while there are major cuts to health and social care, combined with higher rates of referral to social services, means resources are overstretched. Focusing resources on bullying these innocent families leaves victims of actual abuse vulnerable and perpetrators free to abuse these children without consequence. The results are far reaching for all of society and require a response from the government to tackle this problem and provide all families with the support they require.

If you have experienced bullying and/or accusations of fii then Fiightback may be able to help. They are on Facebook, have an open page, closed page and a specialist EDS page.

Please, if you have children who have SEND or chronic illness and have had positive or negative social services involvement, take my new survey

And sign my petition against this cruel practice